We said goodbye last week to one of my former clients, a young man who had horrific multiple genetic and developmental anomalies. He'd been ill for quite some time, so his passing was not so much of a shock as it was just sad--sad only because he will be missed.
I am continually amazed at the strength and tenacity that these children have. The challenges that he faced were unbelieveable. The funeral home provided an online slide show of some of the moments of his life, and although I wasn't going to look at it, I couldn't help myself. In the pictures, I watched him grow weaker and weaker physically, but his spirit, and his will (which I knew was CONSIDERABLE, from first-hand experience ...:D ) never wavered. True, his intellectual capacity could not fathom how ill he really was...but I have come to believe that God gives each of these childen a core of fine steel. Steel because they are really at the mercy of whoever takes care of them. With the caretaker issue, sometimes you hit the jackpot and sometimes you hit rock bottom. Multiply-disabled children and adults need all the steel in their spines that they can get, because it is a matter of survival for them.
I am continually amazed at the strength and tenacity that these children have. The challenges that he faced were unbelieveable. The funeral home provided an online slide show of some of the moments of his life, and although I wasn't going to look at it, I couldn't help myself. In the pictures, I watched him grow weaker and weaker physically, but his spirit, and his will (which I knew was CONSIDERABLE, from first-hand experience ...:D ) never wavered. True, his intellectual capacity could not fathom how ill he really was...but I have come to believe that God gives each of these childen a core of fine steel. Steel because they are really at the mercy of whoever takes care of them. With the caretaker issue, sometimes you hit the jackpot and sometimes you hit rock bottom. Multiply-disabled children and adults need all the steel in their spines that they can get, because it is a matter of survival for them.
This is probably my least coherent blog. So many thoughts are running through my head. I will close with the thing that I really just wanted to say at the get-go...
Welcome home, Corey. You fought a long and hard battle that few of us will ever know. I know that God will make Heaven perfect for you...so right now, I'll bet you're having a grand old time hanging with Jesus, riding on your own personal railroad and praising with harps lutes and lyres. And now, at long last, you have the strength to play as long as you want. See you when I get there.
2 comments:
Amen, dear! You'll have to introduce us...we can all praise and play together when we get home
What beautiful sentiments, my dear!!
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